The transition from hospital to home is a critical milestone for survivors. To ease the transition, Phoenix Society for Burn Survivors is piloting a Journey Forward kit in six hospitals across the country. The Journey Forward Pilot Program made kits available for newly injured burn survivors and their loved ones.
In 2021, we conducted extensive research with one of the top customer experience and consulting firms to better understand the burn survivor journey from injury and acute care through long-term recovery and life after a burn.
Document what’s most important to burn survivors along their healing journey.
Identify significant pain points and needs across the journey.
Determine areas of opportunity along the journey for Phoenix Society to engage and serve.
306 Surveys Completed
17 In-Depth Interviews
594 Ideas Generated
A critical milestone for survivors is during the transition from hospital to home. While the majority of those interviewed continued to have support once they went home, 66% still didn’t know what to expect about their recovery and what that journey would include. Additionally, 73% of survivors were unsure how to find and access the information they needed.
Over half of caregivers and family members interviewed did not have anyone to relate to, and only 34% were made aware of Phoenix Society while their loved one was in the hospital.
As a result of our research, we are launching the Journey Forward Project, the centerpiece of which is the Journey Forward Kit! This first-of-its-kind kit will provide tangible connections to resources and community through technology, burn aftercare products, and more during the critical stage of transitioning home.
Helps survivors understand next steps and expectations as they navigate this new journey
Connects survivors and loved ones to Phoenix Society and local resources so that they do not feel alone
Provides everyone impacted by a burn injury with a supportive community and lifelines
Offers tangible products needed at a critical milestone
Special Edition Journey Magazine - written by survivors and loved ones who share the information, advice, and tools that helped them through their journeys.
Journey Map - helps survivors know what's coming next and understand the road ahead.
Phoenix Society goodies - survivors choose from two box options below!
Aftercare Supplies - sample an array of lotions and care products.
DermaTherapy pillowcase and flat sheet - DermaTherapy is the only FDA-cleared, patented, silk-like, low friction therapeutic linen that supports the healing environment for skin and is clinically proven to be highly effective in supporting burn recovery.
The Journey Forward kit is intended for adult use only.
Wedge™ Mobile Device Stand
Massachusetts General Hospital (Boston, MA)
Orlando Regional Medical Center (Orlando, FL)
Regions Hospital Burn Center (St. Paul, MN)
Spectrum Health Hospital (Grand Rapids, MI)
UC Irvine Regional Burn Center (Orange, CA)
University Medical Center New Orleans (New Orleans, LA)
University Medical Center of Southern Nevada (Las Vegas, NV)
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